People keep asking John what he does all day.... my friends ask me what I'm doing all day....
the simple answer is this: nothing - and everything. All the little tasks we two-handed folk take for granted take John more time - and sometimes even MORE time, if I'm being pulled in multiple directions (kids need help with homework/ trash needs to be emptied/ laundry is calling...) We really have no idea where out time goes - only that it does...
shower/ brush teeth/ change dressing/ get dressed/ breakfast/ check email/ meds/ talk with someone on phone/ get in and out of car/ PT appointment/ doctor appointment/ nap/ at-home PT exercises/ massage/ watch HULU movies/ listen to music/ check blogs- surf web/ lunch/ read mail/ walk dog/meds/ get kids from school/ sporting events/ dishwasher/ laundry/ dinner/ meds/ watch TV/ brush teeth/ get ready for bed/ bed/ meds... rinse & repeat. Each day brings something new - good and/ or bad: more movement in the fingers (good!)... more scabs falling off (good!)... John turning pages in a magazine (good!)... John fastening his shoes (good!).... and pain (bad!)
Highlights include when people have come to visit:
Scot flew home with John and spent the weekend... Hank came for dinner... Bernadette spent a day... Mike, Lynne & Ronnie came by for an afternoon... Chris, Kathy & Kaitlin came for the weekend... Christopher, Nicole & Nicholas came for the day... John came for a visit on his way home from a cruise!.... Tim & Diane came for the day... Brian came for PT and lunch... Aunt Cheryl came for the afternoon and brought a bicycle... Mom and Dad come down for days or weekends often... a steady stream of Jen & Brian's friends come by daily bringing dinner... Bertie... Kathy... Jeff...
call him - or send him a note/ email... or find a time to come visit... Half Moon Bay/ Bay Area folks: John will be at his house for about 10 days around Thanksgiving - he'd love to see you up there!
Jenn,
ReplyDeleteYou are incredibly courageous, patient, REAL, kind, loving and so much more to your brother/friend. I want you to know I think about you and your family's role in this battle almost as much as John. Hang in there friend, and keep laughing! :)
Love,
Bernadette